MARY'S JOURNEY


My journey with chronic pain began around 7 or 8 years ago when I first started getting dysmenorrhea. Of course, I didn't know that it was chronic pain at the time, only something unfamiliar and a monthly event that would stop me from going to school, social events, and the like for a few days out of every month.

Although my symptoms werent as bad in my preteen years, I remember a being told off by my father as he told me that, in the future when I was working, I wouldn't be able to take 3 days off every month, and I needed to get better at managing my symptoms.

When I started my degree, I also started my journey of being diagnosed with endometriosis. This took a long time, and required for me to see a lot of different people.

Often I had just been prescribed different OCPS long tern neural-damping pain medication, and even an anti-depressant class of painkiller that I later found they had stopped prescribing it as an anti-depressant because it tended to have the opposite affect.

Having started a symptom diary, this greatly helped my communication with health professionals because for the first time, I wasn't just telling them and they were trusting my word, but they could see an actual tangible record of my experience.

I required three months of a symptom diary to get a diagnosis, and in general I found it helped rne to recall my own experience as I tended to block out and ignore when my symptoms were bad, leaving me with a warped perception of how well I was actually handling my life.

Mary's Journey Artwork Unfortunately even
now, I struggle
with being able
to manage all the
things that I want
to do, or should
do, with what I am
physically capable
of achieving.